Today is Jason's first day back to work. It was hard for both of us when it came time for him to leave this morning. He has been so strong to help me with everything thing I need it is difficult to feel like doing anything without him here. My mom is staying with me today while Jason is at work. Since I can't drive Jason feels more comfortable with someone being here in case something happens and we have to rush to the hospital.
I spoke to the boys nurses about an hour ago and here are the updates on each:
Anthony has completed all three doses of Ibuprofen in hopes to close his PDA - They are running an echocardiogram today to determine if it has closed or if more doses will be necessary. Depending on when the CHOC cardiologist reads the test we may have the results today or tomorrow.
They are planning to start feeding Anthony today! They haven't found any more blood in his feeding tube, so it looks like he will be ready to eat. Once they start feeding him, he may have his first poopy diaper. Jason and I never thought we would be so excited about poop!
Anthony is also off of the light therapy as of today. His bilirubin is doing well so no more sunglasses for him. Hopefully they are able to remove the large velcro pads the anonymous nurse stuck to his head on his Birthday :) This means we will be able to see more of him and hopefully get to see him open his eyes.
Anthony and Jared have both had a few "spells" over the last 24 hours. According to all of the NICU nurses, this is extremely common with preemies of their gestational age. Although they continue to breathe and their oxygen saturation remains high, their heart rate drops significantly. The nurses need to stimulate them by wiggling them or patting their little bottoms to "wake them up" and get them back on track. This was pretty scary when it happened when we were visiting last night, but routine by all nurses' accounts.
Jared is still on the light therapy for his brusing. Yesterday they increased the light amount becuase his bilirubin level was not improving. Today they decreased it back to the initial amount because it had shown improvement from Saturday's levels.
Today they are also conducting the echocardiogram on Jared to check the status of this PDA. They have been hoping that it may close on its own, but after this test we will know if the Ibuprofen treatment will be necessary or not. We will know the result of this test either today or tomorrow and find out about treatment then.
Jared's head ultrasound from yesterday showed that there was bleeding on both sides of his brain from the episode he had the day that he was born. This was somewhat expected. Both sides are showing as a Grade 1 bleed which (luckily) is the least amount possible. They will order another head ultrasound in a few days to determine if the bleeding is getting any worse. Dr. Rehan said that most likely it will dissipate on its own. Only 5-10% of babies who have Grade 1 bleeding like Jared show any issues from it later in life. We will know more in a few days.
Both boys are still stable and doing very well despite the circumstances. We are always reminded by the nurses and doctors that we have to take one day at a time, and there will be good days and bad days. It is hard, but Jason and I are doing our best to get through every hour let alone every day.
Thank you all for your loving thoughts and prayers!
Fight on! Little Fighters!! - Love Momma